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Contents About the Editors . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Contributors . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Preface . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Acknowledgments . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . I Beginnings 1 Families, Infants, and Young Children: New Challenges to Best Practice Gail L. Ensher . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 3 New Faces and New Languages Caregivers in a Working World The Influences of Media Continuing Agendas and New Challenges for Families Ethical Issues in Perinatal-Neonatal Medicine Realities of Federal Department of Education Mandates 2 Pregnancy, Labor, and Delivery David A. Clark . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 17 Overview of Pregnancy Problem Pregnancies The Fetus Labor and Delivery 3 Evaluation and Care of the Neonate David A. Clark . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 29 Delivery Room Management Birth Injuries The Physiology and Behavior of Transition Assessment of Gestational Age Neurological Evaluation Growth and Gestational Age Routine Newborn Care Newborn Screening Discharge Planning 4 The Family as Foreground Jill R. Weldum, Nancy S. Songer, and Gail L. Ensher . . . . . . . . . . . . . . . . . . . . . . . . . . 39 Careful Assumptions The Significance of a Personal Lens Experiences of Families Who Have Children with Special Needs Collaborative Care as a Best Practice The Family as Context Contemporary Families Family Roles Life Cycle Changes Family Systems Stressors and Resiliency Child Development II Early Problems and Developmental Courses 5 Neonatal Neurology Marilyn A. Fisher . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 61 Prenatal Brain Development Postnatal Brain Development Nervous System Teratogens Neurological Examination Nervous System Impairment 6 Performance Assessment: New Connections and Future Perspectives Gail L. Ensher . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 93 The Need for Follow-Up within the Context of Developmental Outcome Parents as Partners in the Assessment Process Beyond Eligibility: Linking Assessment to Intervention The Need to See Children and Families in Their Natural Environments Fading Models 7 Autism Spectrum Disorders in Young Children: New Paradigms Ellen Barnes, Janet O'Flynn, and Lori Saile . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 107 What Is Autism? What Causes Autism? Sensory and Motor Challenges Cognitive and Learning Style Communication Social Interaction Behavior and Routines Autism and the Family Implications for Intervention and New Research 8 Sensory Processing Disorders: A Teacher's Perspective Toni Bell, Christy Cook, and Janet O'Flynn . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 139 The Nervous System Sensory Processing Disorders Early Intervention Progression of the Field 9 Respiratory Distress in Newborns Upender Munshi, Michelle Eastman, and David A. Clark . . . . . . . . . . . . . . . . . . . . . . 159 Lung Development Acute Respiratory Distress Transition Disorders Fetal Lung Fluid Respiratory Distress Syndrome Aspiration Syndromes Air Leak Syndromes Pulmonary Hemorrhage Neonatal Sepsis and Pneumonia Syndrome Metabolic Errors Management of Acute Respiratory Distress Chronic Lung Disease 10 Nutrition and Feeding Problems Linda Levy and David A. Clark . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 171 Development Components of Nutrition Means of Receiving Nutrition Common Neonatal Diseases Affecting the Ability to Feed 11 Physical Development and Impairment Angel Rios and David A. Clark . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 181 Prenatal History Family History Birth History Structural Defects Physical Examination Testing for Genetic Diseases Future Treatment 12 Infection and Immunity Michelle L. Eastman and David A. Clark . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 199 Diagnostic Features Immunity and Decreased Resistance to Infection Intrauterine (Transplacental) Infections Intrapartum Infections Postpartum Infections 13 The Interface of Physiology and Medical Environments Gail L. Ensher and David A. Clark . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 211 Impact of the Neonatal Intensive Care Unit Environment on Development of the Brain and the Senses Developmentally Appropriate Practices with Newborns and Their Families 14 The Management of Pain in Infants and Young Children Susan Arana Furdon . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 223 Dispelling Myths About Pain Approaches to Infant Pain Management Health Care Workers' Attitudes, Beliefs, and Practices Parents Long-Term Consequences Challenges for Providing Care III Families as the Social Foundation for Growing and Learning 15 Cultural Diversity: Different Ways of Looking at the Roles of Families, Young Children, and Disability Margo A. Nish and Gail L. Ensher . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 237 Diversity and Family Viewpoints Places Where We Live, Learn, and Receive Services Addressing Diverse Cultural Perspectives in Early Education Language Difference or Disability? Training for Best Practice 16 The Cycle of Substance Abuse Heidi Baldwin, Nancy S. Songer, and Gail L. Ensher . . . . . . . . . . . . . . . . . . . . . . . . 249 Prevalence of Alcohol and Drug Use During Pregnancy Contributing Factors Leading to Addiction Prenatal Impact of Substance Abuse Neonatal and Childhood Problems Related to Maternal Substance Abuse Implications of Children Living in Substance-Abusing Homes Breaking the Cycle 17 The Web of Family Abuse, Neglect, and Violence Gail L. Ensher and David A. Clark . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 273 Magnitude of the Problem in the United States Meanings and Definitions Pieces of the Puzzle Bullying and Violence in American Schools Resilience in Children and Families Programs of Promise: Using the Best of What We Know 18 Parents with Developmental Disabilities Caring for Infants and Young Children Ava E. Kleinmann and Nancy S. Songer . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 287 Definitions Challenges of Parents with Developmental Disabilities Legal Issues System Abuse Family Issues Child Risk Factors Research How Parents and Their Young Children Can Best Be Supported 19 Teen Parents: Trends in Adolescent Pregnancy Nancy S. Songer and Gretchen Kinnell . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 297 Who Are the Teens Having the Babies? Predictors, Conditions, and Risk Factors Outcomes for Teens and Their Children What Young Children Need and What Teens Have to Give Programs that Help Teen Parents and Their Children IV The Intersection of Best Practice in Medical Treatment and Early Education 20 The Neonatal Intensive Care Unit: An Environment for Best Practice and Parent-Professional Collaboration Carol Reinson and Dona Bauman . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 319 Meeting Families in the Midst of Neonatal Crisis The Contemporary Touchstone of Family-Centered Care A Developmentally Supportive, Family-Centered Model of Neonatal Care The Need for Real-Live Information: Parents as Advocates The Parents' Perspective 21 Home and School Programs for Infants and Children with Special Needs Deborah A. Bryden and Gail L. Ensher . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 335 Mandates of Statewide and Federal Legislation Early Intervention in the State of New York Transitions to New Settings and New Programs Programs of Promise 22 Putting It All Together Gail L. Ensher, David A. Clark, and Nancy S. Songer . . . . . . . . . . . . . . . . . . . . . . . . 355 What Have We Learned About Pathways to Best Practices? Appendix Resources . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 361 Organizations Providing Obstetric, Pediatric, and Health Care Information Information on Intervention and Early Childhood Special Education Index . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 363
Library of Congress Subject Headings for this publication:
Children with disabilities -- Development.
Developmentally disabled children -- Education.
Infants with disabilities.
Newborn infants -- Diseases.
Infant, Newborn, Diseases -- therapy.
Child.
Developmental Disabilities -- rehabilitation.
Disabled Children -- education.
Early Intervention (Education).
Education, Special.
Family Health.
Infant.
Sensation Disorders -- therapy.