Table of contents for The 36-hour day : a family guide to caring for people with Alzheimer disease, other dementias, and memory loss in later life / Nancy L. Mace, Peter V. Rabins.

Bibliographic record and links to related information available from the Library of Congress catalog.

Note: Contents data are machine generated based on pre-publication provided by the publisher. Contents may have variations from the printed book or be incomplete or contain other coding.


Counter
Contents
Foreword
Preface
Preface to the First Edition
1. Dementia
What Is Dementia?
The Person with Dementia
Where Do You Go from Here?
2. Getting Medical Help for the Person with Dementia
The Evaluation of the Person with a Suspected Dementia
Finding Someone to Do an Evaluation
The Medical Treatment and Management of Dementia
 The Physician
 The Nurse
 The Social Worker
 The Geriatric Care Manager
 The Pharmacist
3. Characteristic Behavioral Symptoms of Dementia
The Brain, Behavior, and Personality: Why People with Dementia Do the Things They Do
Caregiving: Some General Suggestions
Memory Problems
Overreacting, or Catastrophic Reactions
Combativeness
Problems with Speech and Communication
 Problems the Person with Dementia Has in Making Himself Understood
 Problems the Person with Dementia Has in Understanding Others
Loss of Coordination
Loss of Sense of Time
Symptoms That Are Better Sometimes and Worse at Other Times
4. Problems in Independent Living
Mild Cognitive Impairment
When a Person Must Give Up a Job
When a Person Can No Longer Manage Money
When a Person Can No Longer Drive Safely
When a Person Can No Longer Live Alone
 When You Suspect that Someone Living Alone Is Getting Confused
 What You Can Do
 Moving to a New Residence
5. Problems Arising in Daily Care
Hazards to Watch For
 In the House
 Outdoors
 In the Car
 Highways and Parking Lots
 Smoking
 Hunting
Nutrition and Mealtimes
 Meal Preparation
 Mealtimes
 Problem Eating Behaviors
 Malnutrition
 Weight Loss
 Choking
 When to Consider Tube Feeding
Exercise
Recreation
 Meaningful Activity
 Personal Hygiene
 Bathing
 Locating Care Supplies
 Dressing
 Grooming
 Oral Hygiene
Incontinence (Wetting or Soiling)
 Urinary Incontinence
 Bowel Incontinence
 Cleaning Up
Problems with Walking and Balance; Falling
 Becoming Chairbound or Bedbound
 Wheelchairs
Changes You Can Make at Home
 Should Environments Be Cluttered or Bare?
6. Medical Problems
Pain
Falls and Injuries
Pressure Sores
Dehydration
Pneumonia
Constipation
Medications
Dental Problems
Vision Problems
Hearing Problems
Dizziness
Visiting the Doctor
If the Ill Person Must Enter the Hospital
Seizures, Fits, or Convulsions
Jerking Movements (Myoclonus)
The Death of the Person with Dementia
 The Cause of Death
 Dying at Home
 Hospice
 Dying in the Hospital or Nursing Home
 When Should Treatment End?
 What Kind of Care Can Be Given at the End of Life?
7. Behavioral Symptoms of Dementia
The Six R's of Behavior Management
Concealing Memory Loss
Wandering
 Reasons Why People Wander
 The Management of Wandering
Sleep Disturbances and Night Wandering
Worsening in the Evening ("Sundowning")
Losing, Hoarding, or Hiding Things
Rummaging in Drawers and Closets
Inappropriate Sexual Behavior
Repeating the Question
Repetitious Actions
Distractibility
Clinging or Persistently Following You Around
Complaints and Insults
Taking Things
Forgetting Telephone Calls
Demands
Stubbornness and Uncooperativeness
When the Person with Dementia Insults the Sitter
Using Medication to Manage Behavior
8. Symptoms that Appear as Changes in Mood
Depression
Complaints about Health
Suicide
Alcohol or Drug Abuse
Apathy and Listlessness
Remembering Feelings
Anger and Irritability
Anxiety, Nervousness, and Restlessness
False Ideas, Suspiciousness, Paranoia, and Hallucinations
 Misinterpretation
 Failure to Recognize People or Things (Agnosia)
 "You Are Not My Husband"
 "My Mother Is Coming for Me"
 Suspiciousness
 Hiding Things
 Delusions and Hallucinations
Having Nothing to Do
9. Special Arrangements If You Become Ill
In the Event of Your Death
10. Getting Outside Help
Help from Friends and Neighbors
Finding Information and Services
Kinds of Services
 Having Someone Come into Your Home
 Adult Day Care
 Short-Stay Residential Care
Planning in Advance for Home Care or Day Care
When the Person with Dementia Rejects the Care
Your Own Feelings about Getting Respite for Yourself
Locating Resources
Paying for Care
Should Respite Programs Mix People Who Have Different Problems?
Determining the Quality of Services
Research and Demonstration Programs
11. You and the Person with Dementia as Parts of a Family
Changes in Roles
Understanding Family Conflicts
 Division of Responsibility
Your Marriage
Coping with Role Changes and Family Conflict
 A Family Conference
When You Live out of Town
When You Are Not the Primary Caregiver, What Can You Do to Help?
Caregiving and Your Job
Your Children
 Teenagers
12. How Caring for a Person with Dementia Affects You
Emotional Reactions
 Anger
 Embarrassment
 Helplessness
 Guilt
 Laughter, Love, and Joy
 Grief
 Depression
 Isolation and Feeling Alone
 Worry
 Being Hopeful and Being Realistic
Mistreating the Person with Dementia
Physical Reactions
 Fatigue
 Illness
Sexuality
 If Your Spouse Is Impaired
 If Your Impaired Parent Lives with You
The Future
 You as a Spouse Alone
When the Person You Have Cared for Dies
13. Caring for Yourself
Take Time Out
 Give Yourself a Present
 Friends
 Avoid Isolation
Find Additional Help If You Need It
 Recognize the Warning Signs
 Counseling
Joining with Other Families: The Alzheimer's Association
 Support Groups
 Excuses
Advocacy
14. For Children and Teenagers
15. Financial and Legal Issues
Your Financial Assessment
 Potential Expenses
 Potential Resources
Where to Look for the Forgetful Person's Resources
 Legal Matters
16. Nursing Homes and Other Living Arrangements
General Rules for Evaluating a Care Facility
Types of Living Arrangements
Moving with a Person with Dementia
Nursing Homes and Assisted Living Facilities
 Paying for Care
 Finding a Home or Other Facility
 Convenience of Visiting
 Meeting Regulations
 Costs
 Cleanliness and Safety
 Staff
 Care and Services
 The Physical Plant
 Policies on Terminal Care
 Meals
 Rights
 Nursing Home and Assisted Living Programs that Specialize in Dementia Care
 Moving to a Nursing Home
 Adjusting to a New Life
 Visiting
 Your Own Adjustment
 When Problems Occur in the Nursing Home
 Sexual Issues in Nursing Homes
The Department of Veterans Affairs (VA)
State Mental Hospitals
17. Brain Disorders and the Causes of Dementia
Dementia
 Dementia Associated with Alcohol Abuse
 Alzheimer Disease
 Vascular (Multi-Infarct) Dementia
 Lewy Body Dementia
 The Frontotemporal Dementias, Including Pick Disease
 Depression
 Binswanger Disease
 HIV-AIDS
Other Brain Disorders
 Delirium
 Senility, Chronic Organic Brain Syndrome, Acute or Reversible Organic Brain
 Syndromes
 TIA
 Localized Brain Injuries
 Head Injuries (Head Trauma)
 Anoxia or Hypoxia
Mild Cognitive Impairment
 18. Research in Dementia
Understanding Research
 Bogus Cures
Research in Vascular (Multi-Infarct) Dementia and Stroke
Research in Alzheimer Disease
 Structural Changes in the Brain
 Brain Cell Structure
 Neurotransmitters
 Abnormal Proteins
 Transplants of Brain Tissue
 Drug Studies
 Metals
 Prions
 Immunological Defects
 Head Trauma
Epidemiology
Down Syndrome
Old Age
Heredity
Gender
Promising Clinical and Research Tools
Keeping Active
The Effect of Acute Illness on Dementia
Research into the Delivery of Services
Protective Factors
Appendix 1. Using the Internet
Appendix 2. Organizations
Index

Library of Congress Subject Headings for this publication:

Alzheimer's disease -- Patients -- Home care.
Senile dementia -- Patients -- Home care.
Large type books.