Table of contents for Surgically shaping children : technology, ethics, and the pursuit of normality / edited by Erik Parens.

Bibliographic record and links to related information available from the Library of Congress catalog.

Note: Contents data are machine generated based on pre-publication provided by the publisher. Contents may have variations from the printed book or be incomplete or contain other coding.


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Contents
Preface
Acknowledgments
List of Contributors
I. Personal Narratives about Appearance-Normalizing Surgery
1. Twisted Lies: My Journey in an Imperfect Body
Sherri G. Morrris
2. Do I Make You Uncomfortable? Reflections on Using Surgery to Reduce the Distress of
Others
Cassandra Aspinall
3. My Shoe Size Stayed the Same: Maintaining a Positive Sense of Identity with Achondroplasia
and Limb-Lengthening Surgeries
Emily Sullivan Sanford
4. The Seduction of the Surgical Fix
Lisa Abelow Hedley
II. Technology and the Pursuit of Normality
5. Concepts of Technology and Their Role in Moral Reflection
James C. Edwards
6. Emily's Scars: Surgical Shapings, Technoluxe, and Bioethics
Arthur W. Frank
7. Thoughts on the Desire for Normality
Eva Feder Kittay
III. The Surgical Context
8. To Cut or Not to Cut? A Surgeon's Perspective on Surgically Shaping Children
Jeffrey L. Marsh
9. What's Special about the Surgical Context?
Wendy E. Mouradian
10. Are We Helping Children? Outcome Assessments in Craniofacial Care
Wendy E. Mouradian, Todd C. Edwards, Tari D. Topolski, Nichola Rumsey, and Donald L.
Patrick
IV. Children and Parents Deciding about Appearance-Normalizing Surgery
11. Who Should Decide and How?
Priscilla Alderson
12. The Power of Parents and the Agency of Children
Hilde Lindemann
13. "In Their Best Interests": Parents' Experience of Atypical Genitalia
Ellen K. Feder
14. Toward Truly Informed Decisions about Appearance-Normalizing Surgeries
Paul Steven Miller
15. Appearance-Altering Surgery, Children's Sense of Self, and Parental Love
Adrienne Asch
16. What to Expect when You Have the Child You're Not Expecting
Alice Domurat Dreger
Index

Library of Congress Subject Headings for this publication:

Children -- Surgery -- Moral and ethical aspects.
Abnormalities, Human -- Moral and ethical aspects.
Surgery, Plastic -- Moral and ethical aspects.
Children -- Surgery -- Decision making.
Decision making in children.
Reconstructive Surgical Procedures -- ethics -- Child.
Achondroplasia -- surgery -- Child.
Biomedical Technology -- ethics.
Cleft Palate -- surgery -- Child.
Genitalia -- abnormalities -- Child.
Social Perception -- Child.