Table of contents for The ethics and governance of human genetic databases : European perspectives / edited by Matti Hayry ... [et al.].
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Introduction Vilhjálmur Árnason; Part I. Background: 1. On human genetic databases Gardar Árnason; 2. American principles, European values, and the mezzanine rules of ethical genetic data banking Matti Häyry and Tuija Takala; 3. Languages of privacy Salvör Nordal; Part II. Social Concerns: 4. A sociological perspective: public perceptions of privacy and their trust in institutions managing and regulating genetic databases Kjell E. Eriksson, Margrét L. Gudmundsdóttir, Külliki Korts, Sue Weldon; 5. Estonia Külliki Korts; 6. Iceland Margrét Lilja Gudmundsdóttir and Salvör Nordal; 7. Sweden Kjell E. Eriksson; 8. United Kingdom Sue Weldon; 9. Public discourses on human genetic databases Piia Tammpuu; Part III. Legal Issues: 10. Regulating human genetic databases in Europe Jane Kaye; 11. Consent and population genetic databases Hördur Helgi Helgason; 12. Third party's interests in population genetic databases Lotta Wendel; 13. Transforming principles of biolaw into national legislation Ants Nõmper; 14. Governance of population genetic databases Susan M. C. Gibbons; 15. The legal jigsaw governing population genetic databases Jane Kaye; Part IV. Ethical Questions: 16. Introduction Vilhjálmur Árnason; 17. Pursuing equality: questions of Social justice and population genomics Sarah Wilson and Ruth Chadwick; 18. Benefit-sharing and biobanks Kadri Simm; 19. Genetic discrimination Lena Halldenius; 20. Privacy Salvör Nordal; 21. Trust Margit Sutrop; 22. Consent Sigurdur Kristinsson and Vilhjálmur Árnason; Part V. Political Considerations: 23. Impact of biobanks on ethical frameworks Ruth Chadwick and Mark Cutter; 24. Genetics, rhetoric and policy Gardar Árnason; 25. Genetic databases and governance Rainer Kattel; 26. Conclusion: bioethical analysis of the results Matti Häyry and Tuija Takala.
Library of Congress subject headings for this publication:
Human genetics -- Databases -- Moral and ethical aspects.
Biological Specimen Banks -- ethics -- Europe.
Databases, Genetic -- ethics -- Europe.
Genetic Privacy -- Europe.
Genetics, Medical -- ethics -- Europe.