Publisher description for Alex : the life of a child / Frank Deford.
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Alexandra Deford, a precious and precocious girl, was just eight years old
when she died in 1980 following a battle against the debilitating effects of
cystic fibrosis, the number-one genetic killer of children. Her poignant and
uplifting story touched the hearts of millions when it was first published and
then made into a memorable television movie. A new introduction contains
information on the latest cystic fibrosis research, and a touching postcript
reveals how the Deford family came to terms with the loss of Alex.
Whenever he speaks, sportswriter Frank Deford knows people will bring
articles for him to sign. But what makes him happiest is when someone attends a
sports-oriented lecture and brings a copy of Alex: The Life of a Child for
him to sign. "Invariably, and happily, there's usually someone at each
appearance who either brings that book or wants to talk about their connection
to cystic fibrosis." Deford says. "It's tremendously gratifying to me.
Rarely does a week go by that I don't get a letter about that book. People leave
things at her grave. They really do. I have people tell me that she changed
their lives. It's terribly dramatic, but they literally say that. I heard from a
woman who became a pediatric nurse after reading the book. Hearing from people
like that means more to me than anything."
Library of Congress subject headings for this publication:
Deford, Alexandra, -- 1971-1980 -- Health.
Cystic fibrosis in children -- Patients -- United States -- Biography.
Terminally ill children -- United States -- Biography.
Deford, Alexandra, -- 1971-1980.